Information for patients
Information in English
www.22q13.org
Website of the Phelan-McDermid syndrome foundation in USA. They offer support to families and are building a greater awareness about the syndrome through research and by sponsoring a bi-annual international conference.
Website of Unique, Rare Chromosome Disorder support group in the UK. They provide information and offer support to patients, families and professionals.
If you have any questions please contact the chromosome clinic, UMCG, Groningen. More info (in Dutch) chromosomenpoli
| Last modified: | 07 February 2020 3.14 p.m. |
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