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About us Medical Sciences Research Department of Genetics Research Lines Phelan-McDermid syndroom
University Medical Center Groningen

Information for patients

Unique
Unique
VG networks
VG networks

Information in English

www.22q13.org

Website of the Phelan-McDermid syndrome foundation in USA. They offer support to families and are building a greater awareness about the syndrome through research and by sponsoring a bi-annual international conference.

www.rarechromo.org

Website of Unique, Rare Chromosome Disorder support group in the UK. They provide information and offer support to patients, families and professionals.

If you have any questions please contact the chromosome clinic, UMCG, Groningen. More info (in Dutch) chromosomenpoli

Last modified:07 February 2020 3.14 p.m.
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