Fundraising for Chromosome 6 research
If you would like to make a donation, you can use one of the following accounts. On behalf of all those involved, our thanks! See Thank you
(1) PayPal account: firstname.lastname@example.org
(2) UMCG bank account: NL12 INGB 0651 6497 81
SWIFT-BIC code: INGBNL2A for international transfers
The UMCG has set up a JustGiving page where everyone who wants to organize an activity can make an action page. For example, this can be a sports event or a creative one or an anniversary. All forms of donations, however small, will contribute to this research work.
www.justgiving.nl/nl/charities/388-umcg-chromosome-6-research (see language flag in top right corner of webpage)
Fundraising website more suited for US residents. All forms of donations, however small, will contribute to this research work.
Bracelets to wear when you need to be strong and brave in tough situations. "Our children have the rare condition of Chromosome 6 Deletion or Duplication Syndrome. We are raising money to fund research being done in the Netherlands that will help doctors treat our children's unique medical conditions."
Order a Bravelet here
(6) HOPE T-shirts
Online sales of T-shirts here
(7) Christmas shopping December 2014
A C6 mother in the US has set up a webshop - Shop for a Cause - directly funding the Chromosome 6 research team in the Netherlands! By simply doing a little Christmas shopping at Stella and Dot, you will help provide resources needed to gain a better understanding of chromosome 6 disorders, their treatment, and long term effects.
For those outside our community who may not understand the implications of being born with C6, there are just handfuls of children across the globe who share this genetic anomaly, and very little is known amongst the scientific and medical community – often making diagnostic procedures and long term prognosis both complicated and uncertain.
Because our children are so truly unique, and national funding is limited to “the big guys,” it's completely up to us to make this happen! Simply CLICK ON THE PERSONAL LINK BELOW, and between now and December 23, you can directly support Clint and our C6 family.
Let’s shop for a reason – great ones…Clint, Zach, Evan, Sam, Jada, Max, Kinsley, Haleigh, Megan, Roeland...and ALL our sweet C6 babies worldwide.
|Last modified:||06 February 2020 12.43 p.m.|