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Publicaties

Bullous pemphigoid outcome measurement: a scoping review of outcome heterogeneity and trends in clinical research of treatments

Navigating challenges in clinical trials for bullous pemphigoid and pemphigus: learnings from the clinical trial graveyard and an international expert survey

Core outcome domain sets for clinical trials in epidermolysis bullosa — a COSEB protocol to achieve consensus on “what” to measure

Measuring What Matters in Bullous Diseases: Patient Needs, Outcome Measurement and Drug Development

Mucous Membrane Pemphigoid Outcome Measurement in Clinical Research: A Scoping Review

Outcome measurement in pemphigus clinical research: a scoping review on heterogeneity in outcome reporting and definitions

Harmonization of outcomes in epidermolysis bullosa: report of the Core Outcome Sets for Epidermolysis Bullosa (COSEB) kick-off meeting

Navigating the diagnostic journey of epidermolysis bullosa - a qualitative study on the lived experiences and needs of parents and patients

Systematic review on antipruritic therapies for patients with Epidermolysis bullosa

Towards a roadmap for COSEB: the next steps in harmonization of outcomes for epidermolysis bullosa