dr. E.L.M. (Els) Maeckelberghe
Associate Professor in Bioethics and Research Ethics / Confidential Advisor Scientific Integrity
Research
Publications
Suffering of parents four years after picu admission of their child
de Weerd, W., Brouwer, M., Sauer, P. & Maeckelberghe, E. L. M., 2014, In : Archives of Disease in Childhood. 99, Suppl 2, p. A348Research output: Contribution to journal › Meeting Abstract › Academic
Is there suffering in children four years after a picu admission?
de Weerd, W., Brouwer, M., Sauer, P. & Maeckelberghe, E. L. M., 2014, In : Archives of Disease in Childhood. 99, suppl. 2, p. A1–A620Research output: Contribution to journal › Meeting Abstract › Academic
Breaking bad news: what parents would like you to know
Brouwer, M. A., Maeckelberghe, E. L. M., van der Heide, A., Hein, I. M. & Verhagen, E. A. A. E., 2020, In : Archives of Disease in Childhood. p. 1-6 6 p.Research output: Contribution to journal › Article › Academic › peer-review
Uptake and effectiveness of a tailor-made online lifestyle programme targeting modifiable risk factors for dementia among middle-aged descendants of people with recently diagnosed dementia: study protocol of a cluster randomised controlled trial (Demin study)
Demin consortium, Vrijsen, J., Abu-Hanna, A., Maeckelberghe, E. L., De Deyn, P. P., de Winter, A. F., Reesink, F. E., Oude Voshaar, R. C., Buskens, E., de Rooij, S. E. & Smidt, N., 2020, In : BMJ Open. 10, 10, 10 p., e039439.Research output: Contribution to journal › Article › Academic › peer-review
Covid-19: a Test for our Humanity
Maeckelberghe, E. L. M. & Schröder-Bäck, P., Oct-2020, In : European Journal of Public Health. 30, 5, p. 852–853 2 p.Research output: Contribution to journal › Article › Academic › peer-review
Press / Media
(Un)Well - documentary netflix - expert comment on Radio 1 NPO
12/08/2020
1 Media contribution
Press/Media: Expert Comment › Popular
New law on organ donation Netherlands
01/07/2020
1 Media contribution
Press/Media: Expert Comment › Popular
Behoefte aan gesprek over waardig levenseinde kind
28/09/2019
1 Media contribution
Press/Media: Expert Comment › Academic
Activities
Children’s experiences of taking part in medical research in the UK and Netherlands: research as iterative process.
Malou Luchtenberg (Speaker), Els Maeckelberghe (Speaker), Louise Locock (Speaker) & Eduard Verhagen (Invited speaker)
28-Apr-2019Activity: Talk or presentation › Academic
We cannot do research about them, without involving them! Attitudes of researchers and children about the involvement of children as co-researchers in pediatric medical research.
Laura Postma (Speaker), Malou Luchtenberg (Speaker), Els Maeckelberghe (Speaker) & Eduard Verhagen (Speaker)
24-Jun-2019Activity: Talk or presentation › Academic
International Children’s Advisory Network (iCAN) Annual Meeting 2019
Malou Luchtenberg (Invited speaker) & Els Maeckelberghe (Contributor)
27-Jun-2019Activity: Participating in or organising an event › Participation in conference › Academic
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