dr. E.L.M. (Els) Maeckelberghe

Associate Professor in Bioethics and Research Ethics / Confidential Advisor Scientific Integrity

Faculty of Medical Sciences

Telephone:

E-mail:

e.l.m.maeckelberghe umcg.nl

ORCID Research Portal

Publications

How to Ensure Inclusivity in Large-Scale General Population Cohort Studies?: Lessons Learned with Regard to Including and Assessing Sex, Gender, and Sexual Orientation

Ballering, A. V., Burke, S. M., Maeckelberghe, E. L. M. & Rosmalen, J. G. M., Jul-2023, In: Archives of Sexual Behavior. 52, p. 2163–2172 10 p.

Research output: Contribution to journal › Article › Academic › peer-review

The ethical challenges of personalized digital health.

Maeckelberghe, E. L. M., Zdunek, K., Marceglia, S., Farsides, B. & Rigby, M., 19-Jun-2023, In: Frontiers in Medicine. 10, 14 p., 1123863.

Research output: Contribution to journal › Article › Academic › peer-review

Involving children and young people in paediatric research priority setting: a narrative review

Postma, L., Luchtenberg, M. L., Verhagen, A. A. E. & Maeckelberghe, E. L., 25-Nov-2022, In: BMJ Paediatrics Open. 6, 1, 22 p., e001610.

Research output: Contribution to journal › Review article › peer-review

Lessons learned on sex, gender and sexual orientation in large-scale general population cohort studies.

Ballering, A., Burke, S. M., Maeckelberghe, E. L. M. & Rosmalen, J., Sept-2022.

Research output: Contribution to conference › Poster › Academic

Motives for withdrawal of participation in biobanking and participants’ willingness to allow linkages of their data

Broekstra, R., Aris-Meijer, J., Maeckelberghe, E. L. M., Stolk, R. & Otten, S., Mar-2022, In: European Journal of Human Genetics. 30, p. 367–377 11 p.

Research output: Contribution to journal › Article › Academic › peer-review

A genetic researcher’s devil’s dilemma: Warn relatives about their genetic risk or respect confidentiality agreements with research participants?

van den Heuvel, L. M., Maeckelberghe, E. L. M., Ploem, M. C. & Christiaans, I., 23-Nov-2021, In: Bmc medical ethics. 22, 7 p., 155.

Research output: Contribution to journal › Article › Academic › peer-review

Demographic and prosocial intrapersonal characteristics of biobank participants and refusers: the findings of a survey in the Netherlands

Broekstra, R., Aris-Meijer, J., Maeckelberghe, E., Stolk, R. & Otten, S., Jan-2021, In: EJHG. 1, p. 11-19 9 p.

Research output: Contribution to journal › Article › Academic › peer-review

All (185) publications

Press/media

Piden exenciones temporales de patentes para las vacunas Covid-19

Els Maeckelberghe

07/07/2021

Press/Media: Expert Comment › Professional

Fieldlabs experiments

Els Maeckelberghe

21/04/2021

Press/Media: Expert Comment › Popular

Wetenschap: Fieldlabs voldoen echt niet aan wetenschappelijke normen

Els Maeckelberghe

21/04/2021

Press/Media: Research › Popular

Keuzes maken

Els Maeckelberghe

06/10/2020

Press/Media: Public Engagement Activities › Popular

'Wat het daglicht niet kan verdragen' expert comment on (Un)Well - documentary netflix - Radio 1 NPO

Els Maeckelberghe

12/08/2020

Press/Media: Expert Comment › Popular

New law on organ donation Netherlands

Els Maeckelberghe

01/07/2020

Press/Media: Expert Comment › Popular

“God in tijden van Corona - De ethische vraag op dit moment is de vraag van humaniteit.”

Els Maeckelberghe

06/04/2020

Press/Media: Public Engagement Activities › Popular

Behoefte aan gesprek over waardig levenseinde kind

Els Maeckelberghe

28/09/2019

Press/Media: Expert Comment › Academic

“Is je baby een doener of een denker? Doe een DNA-test!”

Els Maeckelberghe

24/02/2019

Press/Media: Expert Comment › Popular

Donor legislation

Reinder Broekstra & Els Maeckelberghe

16/02/2018

Press/Media: Expert Comment › Popular

All (10) press/media

View full research profile

dr. E.L.M. (Els) Maeckelberghe

Publications

How to Ensure Inclusivity in Large-Scale General Population Cohort Studies?: Lessons Learned with Regard to Including and Assessing Sex, Gender, and Sexual Orientation

The ethical challenges of personalized digital health.

Involving children and young people in paediatric research priority setting: a narrative review

Lessons learned on sex, gender and sexual orientation in large-scale general population cohort studies.

Motives for withdrawal of participation in biobanking and participants’ willingness to allow linkages of their data

A genetic researcher’s devil’s dilemma: Warn relatives about their genetic risk or respect confidentiality agreements with research participants?

Breaking bad news: what parents would like you to know

COVID-19: Opportunities for public health ethics?

De geestelijk verzorger bestaat, maar waar is de ethicus?

Demographic and prosocial intrapersonal characteristics of biobank participants and refusers: the findings of a survey in the Netherlands

Press/media

Piden exenciones temporales de patentes para las vacunas Covid-19

Fieldlabs experiments

Wetenschap: Fieldlabs voldoen echt niet aan wetenschappelijke normen

Keuzes maken

'Wat het daglicht niet kan verdragen' expert comment on (Un)Well - documentary netflix - Radio 1 NPO

New law on organ donation Netherlands

“God in tijden van Corona - De ethische vraag op dit moment is de vraag van humaniteit.”

Behoefte aan gesprek over waardig levenseinde kind

“Is je baby een doener of een denker? Doe een DNA-test!”

Donor legislation