How can we reduce loneliness among informal caregivers?

Researchers from the University of Groningen will soon begin a five-year research project aimed at providing more insight into what loneliness looks like among those providing intensive informal care. The project will also explore ways to improve the situation for these caregivers. The initiative is made possible through a subsidy from the National Science Agenda.

While many caregivers find fulfillment in caring for a loved one, it can simultaneously be a lonely task. Lack of time for oneself, misunderstandings from friends and acquaintances, the feeling of being alone in the journey – these are just a few examples of the challenges caregivers face. These issues not only impact the caregiver but also affect the person receiving care. With the growing demand for informal care, it becomes a societal problem.

Unconventional Care 

Therefore, a consortium with UG researchers Annette van der Putten, Jorien Luijkx, Annet ten Brug and Jasperina Brouwer is launching a new five-year research project on this topic. The group focuses on caregivers who provide prolonged intensive and/or complex care in a life phase where it is not typical: parents of children with disabilities, individuals caring for their partners, and young adults who have a close relative with a chronic condition. The consortium, comprising the University of Groningen, Open University, Rotterdam University of Applied Sciences, and various practical partners, aims to investigate what loneliness looks like in these groups and how the situation can be improved. One of the goals is also to raise awareness among employers, schools, professionals, and the broader society.

National Science Agenda 

The research project is made possible by a substantial grant of €1,028,720, recently awarded to the researchers under the National Science Agenda (NWA) by NWO. The topics on this agenda are the result of input from both scientists and the general public. Van der Putten's project aligns with the thematic program 'loneliness' which seeks to better understand what loneliness looks like in different segments of society and explore potential causes and solutions.

Researchers from the University of Groningen involved in the project include:

• Annette van der Putten (main applicant)
• Jorien Luijkx (project leader)
• Annet ten Brug
• Jasperina Brouwer

The consortium consists of: University of Groningen, Open University, Rotterdam University of Applied Sciences, Expertisecentrum Inclusief Onderwijs (ECIO), Sch(ouders), MantelzorgNL, Spinal Cord Injury Organization Netherlands, ALS Patients Association, Parkinson Association, and UMC Utrecht/De Hoogstraat.