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Publicaties

Patients' and parents' experiences during wound care of epidermolysis bullosa from a dyadic perspective: a survey study

The relationship between quality of life and coping strategies of children with EB and their parents

Impact of Painful Wound Care in Epidermolysis Bullosa During Childhood: An Interview Study with Adult Patients and Parents

Psychosocial recommendations for the care of children and adults with epidermolysis bullosa and their family: evidence based guidelines

Comparing genome-wide chromatin profiles using ChIP-chip or ChIP-seq

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