Half of all young children with a rare inherited liver disease need a liver transplant

(Geneva, 11 May, 2018) An international research team has today reported the first results of a study investigating the natural history of progressive familial intrahepatic cholestasis (PFIC) - a rare genetic liver disease that predominantly affects children. Most alarmingly, the team reported that, by the age of 10 years, approximately half of the children with two different forms of PFIC had already received a liver transplant.

Media Release: ESPGHAN 2018 : Half of all young children with a rare inherited liver disease need a liver transplant

• Senior author of the abstract and Chair of the ESPGHAN Hepatology Committee - Henkjan Verkade, Professor of Pediatrics at the University Medical Center Groningen, Netherlands
• Lead Researcher -Daan van Wessel from the University Medical Center Groningen, Netherlands