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Web-based personalised information and support for patients with a neuroendocrine tumour: randomised controlled trial

de Hosson, L. D., Bouma, G., Stelwagen, J., van Essen, H., de Bock, G. H., de Groot, D. J. A., de Vries, E. G. E. & Walenkamp, A. M. E., 28-Feb-2019, In : Orphanet journal of rare diseases. 14, 8 p., 60.

Research output: Contribution to journalArticleAcademicpeer-review

BackgroundPatients with a neuroendocrine tumour (NET) frequently have physical and psychosocial complaints. Aim of this study is to determine whether a web-based, personalised information and support system (WINS) reduces distress and/or improves patients' perception of and satisfaction with information received.MethodsPatients with NET, stratified for those newly diagnosed (

Original languageEnglish
Article number60
Number of pages8
JournalOrphanet journal of rare diseases
Volume14
Publication statusPublished - 28-Feb-2019

    Keywords

  • Neuroendocrine tumour, Information, Quality of life, Internet, Web-based system, QUALITY-OF-LIFE, CANCER, MANAGEMENT, DEPRESSION, ANXIETY

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