Publication

The "more at home with dementia" program: a randomized controlled study protocol to determine how caregiver training affects the well-being of patients and caregivers

Birkenhäger-Gillesse, E. G., Kollen, B. J., Zuidema, S. U. & Achterberg, W. P., 22-Oct-2018, In : BMC Geriatrics. 18, 1, 8 p., 252.

Research output: Contribution to journalArticleAcademicpeer-review

APA

Birkenhäger-Gillesse, E. G., Kollen, B. J., Zuidema, S. U., & Achterberg, W. P. (2018). The "more at home with dementia" program: a randomized controlled study protocol to determine how caregiver training affects the well-being of patients and caregivers. BMC Geriatrics, 18(1), [252]. https://doi.org/10.1186/s12877-018-0948-3

Author

Birkenhäger-Gillesse, Elizabeth G ; Kollen, Boudewijn J ; Zuidema, Sytse U ; Achterberg, Wilco P. / The "more at home with dementia" program : a randomized controlled study protocol to determine how caregiver training affects the well-being of patients and caregivers. In: BMC Geriatrics. 2018 ; Vol. 18, No. 1.

Harvard

Birkenhäger-Gillesse, EG, Kollen, BJ, Zuidema, SU & Achterberg, WP 2018, 'The "more at home with dementia" program: a randomized controlled study protocol to determine how caregiver training affects the well-being of patients and caregivers', BMC Geriatrics, vol. 18, no. 1, 252. https://doi.org/10.1186/s12877-018-0948-3

Standard

The "more at home with dementia" program : a randomized controlled study protocol to determine how caregiver training affects the well-being of patients and caregivers. / Birkenhäger-Gillesse, Elizabeth G; Kollen, Boudewijn J; Zuidema, Sytse U; Achterberg, Wilco P.

In: BMC Geriatrics, Vol. 18, No. 1, 252, 22.10.2018.

Research output: Contribution to journalArticleAcademicpeer-review

Vancouver

Birkenhäger-Gillesse EG, Kollen BJ, Zuidema SU, Achterberg WP. The "more at home with dementia" program: a randomized controlled study protocol to determine how caregiver training affects the well-being of patients and caregivers. BMC Geriatrics. 2018 Oct 22;18(1). 252. https://doi.org/10.1186/s12877-018-0948-3


BibTeX

@article{2a90e9a71a484f77a4c6a8df85926d59,
title = "The {"}more at home with dementia{"} program: a randomized controlled study protocol to determine how caregiver training affects the well-being of patients and caregivers",
abstract = "BACKGROUND: Caring for people with dementia imposes heavy burdens on caregivers, especially spouses. This can lead to depression, anxiety, and physical symptoms in the caregiver, with early institutionalization for the patient. An Australian study reported that a residential caregiver training program delivered in medical settings could delay nursing home admission, lower mortality, reduce psychological morbidity in caregivers, and lower healthcare costs. In this replication study, we aim to determine the effectiveness of an adaptation of this program to non-medical settings in the Dutch health care system.METHODS: A randomized controlled study design will be used, comparing an intervention group with a control group. The intervention will last for five days and will be delivered in either a holiday park or a bed and breakfast setting. The control group will receive care as usual. Data will be collected at baseline and after 3 and 6 months, and outcomes will be assessed in the caregiver group and in the dementia group. The primary outcome will be caregiver-related quality of life after 3 months. The main secondary outcome will be the neuropsychiatric symptoms in the dementia group. Secondary outcomes in the dementia group will be activities of daily living and instrumental activities of daily living, use of health facilities, quality of life, agitation, dementia severity, and use of psychotropic medication. Secondary outcomes in the caregiver group will be the subjective and objective burdens, health and health care facility use, psychotropic medication use, depression, anxiety, and perseverance time.DISCUSSION: We anticipate that the outcomes will allow us to confirm the effectiveness of the intervention, and in turn, potentially inform the introduction of this program into care plans. It is also expected that the experiences and recommendations of participants will help us to develop the training program further.TRIAL REGISTRATION: Registered in the Netherlands Trial Register on March 9, 2016, number 5775 .",
keywords = "Dementia, Caregiver, Training, Psychosocial intervention, PSYCHOSOCIAL INTERVENTIONS, FAMILY CAREGIVERS, OLDER-PEOPLE, METAANALYSIS, VALIDATION, DEPRESSION, COMMUNITY, BURDEN, CARE, ANXIETY",
author = "Birkenh{\"a}ger-Gillesse, {Elizabeth G} and Kollen, {Boudewijn J} and Zuidema, {Sytse U} and Achterberg, {Wilco P}",
year = "2018",
month = oct,
day = "22",
doi = "10.1186/s12877-018-0948-3",
language = "English",
volume = "18",
journal = "BMC Geriatrics",
issn = "1471-2318",
publisher = "BioMed Central Ltd.",
number = "1",

}

RIS

TY - JOUR

T1 - The "more at home with dementia" program

T2 - a randomized controlled study protocol to determine how caregiver training affects the well-being of patients and caregivers

AU - Birkenhäger-Gillesse, Elizabeth G

AU - Kollen, Boudewijn J

AU - Zuidema, Sytse U

AU - Achterberg, Wilco P

PY - 2018/10/22

Y1 - 2018/10/22

N2 - BACKGROUND: Caring for people with dementia imposes heavy burdens on caregivers, especially spouses. This can lead to depression, anxiety, and physical symptoms in the caregiver, with early institutionalization for the patient. An Australian study reported that a residential caregiver training program delivered in medical settings could delay nursing home admission, lower mortality, reduce psychological morbidity in caregivers, and lower healthcare costs. In this replication study, we aim to determine the effectiveness of an adaptation of this program to non-medical settings in the Dutch health care system.METHODS: A randomized controlled study design will be used, comparing an intervention group with a control group. The intervention will last for five days and will be delivered in either a holiday park or a bed and breakfast setting. The control group will receive care as usual. Data will be collected at baseline and after 3 and 6 months, and outcomes will be assessed in the caregiver group and in the dementia group. The primary outcome will be caregiver-related quality of life after 3 months. The main secondary outcome will be the neuropsychiatric symptoms in the dementia group. Secondary outcomes in the dementia group will be activities of daily living and instrumental activities of daily living, use of health facilities, quality of life, agitation, dementia severity, and use of psychotropic medication. Secondary outcomes in the caregiver group will be the subjective and objective burdens, health and health care facility use, psychotropic medication use, depression, anxiety, and perseverance time.DISCUSSION: We anticipate that the outcomes will allow us to confirm the effectiveness of the intervention, and in turn, potentially inform the introduction of this program into care plans. It is also expected that the experiences and recommendations of participants will help us to develop the training program further.TRIAL REGISTRATION: Registered in the Netherlands Trial Register on March 9, 2016, number 5775 .

AB - BACKGROUND: Caring for people with dementia imposes heavy burdens on caregivers, especially spouses. This can lead to depression, anxiety, and physical symptoms in the caregiver, with early institutionalization for the patient. An Australian study reported that a residential caregiver training program delivered in medical settings could delay nursing home admission, lower mortality, reduce psychological morbidity in caregivers, and lower healthcare costs. In this replication study, we aim to determine the effectiveness of an adaptation of this program to non-medical settings in the Dutch health care system.METHODS: A randomized controlled study design will be used, comparing an intervention group with a control group. The intervention will last for five days and will be delivered in either a holiday park or a bed and breakfast setting. The control group will receive care as usual. Data will be collected at baseline and after 3 and 6 months, and outcomes will be assessed in the caregiver group and in the dementia group. The primary outcome will be caregiver-related quality of life after 3 months. The main secondary outcome will be the neuropsychiatric symptoms in the dementia group. Secondary outcomes in the dementia group will be activities of daily living and instrumental activities of daily living, use of health facilities, quality of life, agitation, dementia severity, and use of psychotropic medication. Secondary outcomes in the caregiver group will be the subjective and objective burdens, health and health care facility use, psychotropic medication use, depression, anxiety, and perseverance time.DISCUSSION: We anticipate that the outcomes will allow us to confirm the effectiveness of the intervention, and in turn, potentially inform the introduction of this program into care plans. It is also expected that the experiences and recommendations of participants will help us to develop the training program further.TRIAL REGISTRATION: Registered in the Netherlands Trial Register on March 9, 2016, number 5775 .

KW - Dementia

KW - Caregiver

KW - Training

KW - Psychosocial intervention

KW - PSYCHOSOCIAL INTERVENTIONS

KW - FAMILY CAREGIVERS

KW - OLDER-PEOPLE

KW - METAANALYSIS

KW - VALIDATION

KW - DEPRESSION

KW - COMMUNITY

KW - BURDEN

KW - CARE

KW - ANXIETY

U2 - 10.1186/s12877-018-0948-3

DO - 10.1186/s12877-018-0948-3

M3 - Article

C2 - 30348097

VL - 18

JO - BMC Geriatrics

JF - BMC Geriatrics

SN - 1471-2318

IS - 1

M1 - 252

ER -

ID: 67060405