The Interactive Web-Based Program MSmonitor for Self-Management and Multidisciplinary Care in Persons With Multiple Sclerosis: Quasi-Experimental Study of Short-Term Effects on Patient Empowerment

Jongen, P. J., ter Veen, G., Lemmens, W., Donders, R., van Noort, E. & Zeinstra, E., 9-Mar-2020, In : Journal of medical internet research. 22, 3, 13 p., 14297.

Research output: Contribution to journalArticleAcademicpeer-review

  • Peter Joseph Jongen
  • Gezien ter Veen
  • Wim Lemmens
  • Rogier Donders
  • Esther van Noort
  • Esther Zeinstra

Background: Empowerment helps persons with a chronic disease to self-manage their condition and increase their autonomy and participation. MSmonitor (Curavista bv) is an interactive Web-based program for self-management and multidisciplinary care in multiple sclerosis (MS). It includes, among others, short questionnaires on fatigue (Modified Fatigue Impact Scale-5 [MFIS-5]) and health-related quality of life (HRQoL, Leeds Multiple Sclerosis Quality of Life [LMSQoL]); long questionnaires on disabilities, perception of disabilities (Multiple Sclerosis Impact Profile), and HRQoL (Multiple Sclerosis Quality of Life-54); a Medication and Adherence Inventory and an Activity Diary. The combination MFIS-5, LMSQoL, and Medication and Adherence Inventory constitutes the Quick Scan. Objective: This study aimed to investigate the short-term effects of MSmonitor on empowerment in patients with MS. Methods: We conducted a quasi-experimental study in a general hospital. Of the 180 patients with MS, 125 were eligible, 30 used MSmonitor, and 21 participated in the study (mean age 45.4 years, SD 10.2 years). A total of 24 eligible patients who did not use MSmonitor constituted the control group (mean age 49.3 years, SD 11.4 years). At baseline and at 4 months, we assessed self-efficacy (Multiple Sclerosis Self-Efficacy Scale [MSSES]), participation and autonomy (Impact on Participation and Autonomy [IPA] questionnaire), and self-management (Partners In Health [PIH] questionnaire). Differences between time points and groups were tested with paired t tests and χ2 tests. Results: In the MSmonitor group, follow-up values remained unchanged for MSSES control (P=.19), MSSES function (P=.62), IPA limitations (P=.26), IPA problems (P=.40), PIH recognition and management of symptoms (P=.52), PIH adherence to treatment (P=.80), and PIH coping (P=.73), whereas the PIH knowledge score had improved (mean 27.8, SD 1.7 vs mean 28.7, SD 2.0; P=.02). The overall utilization rate of the program components was 83% and that of the Quick Scan was 95%. In the control group, all outcomes had remained unchanged. Conclusions: The results suggest that for first-time users of the MSmonitor program and their health care providers, it may not be justified to expect a short-term improvement in empowerment in terms of self-efficacy, self-management, autonomy, or participation. Furthermore, a lack of effect on empowerment is not because of nonusage of the program components.

Original languageEnglish
Article number14297
Number of pages13
JournalJournal of medical internet research
Issue number3
Publication statusPublished - 9-Mar-2020


  • multiple sclerosis, empowerment, self-management, eHealth, internet-based intervention, internet-based communication, personal autonomy, social participation, self-efficacy, OF-LIFE MEASURE, PSYCHOMETRIC PROPERTIES, CONSTRUCT-VALIDITY, HOSPITAL ANXIETY, HEALTH-CARE, IMPACT, PARTICIPATION, VALIDATION, AUTONOMY, VERSION

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