Publication

Patient-reported outcomes of adults with congenital heart disease from eight European countries: scrutinising the association with healthcare system performance

APPROACH-IS Consortium, ISACHD, Van Bulck, L., Luyckx, K., Goossens, E., Apers, S., Kovacs, A. H., Thomet, C., Budts, W., Sluman, M. A., Eriksen, K., Berghammer, M., Johansson, B., Caruana, M., Soufi, A., Callus, E. & Moons, P., Aug-2019, In : European Journal of Cardiovascular Nursing. 18, 6, p. 465-473 9 p.

Research output: Contribution to journalArticleAcademicpeer-review

APA

APPROACH-IS Consortium, ISACHD, Van Bulck, L., Luyckx, K., Goossens, E., Apers, S., Kovacs, A. H., Thomet, C., Budts, W., Sluman, M. A., Eriksen, K., Berghammer, M., Johansson, B., Caruana, M., Soufi, A., Callus, E., & Moons, P. (2019). Patient-reported outcomes of adults with congenital heart disease from eight European countries: scrutinising the association with healthcare system performance. European Journal of Cardiovascular Nursing, 18(6), 465-473. https://doi.org/10.1177/1474515119834484

Author

APPROACH-IS Consortium ; ISACHD ; Van Bulck, Liesbet ; Luyckx, Koen ; Goossens, Eva ; Apers, SiIke ; Kovacs, Adrienne H. ; Thomet, Corina ; Budts, Werner ; Sluman, Maayke A. ; Eriksen, Katrine ; Berghammer, Malin ; Johansson, Bengt ; Caruana, Maryanne ; Soufi, Alexandra ; Callus, Edward ; Moons, Philip. / Patient-reported outcomes of adults with congenital heart disease from eight European countries : scrutinising the association with healthcare system performance. In: European Journal of Cardiovascular Nursing. 2019 ; Vol. 18, No. 6. pp. 465-473.

Harvard

APPROACH-IS Consortium, ISACHD, Van Bulck, L, Luyckx, K, Goossens, E, Apers, S, Kovacs, AH, Thomet, C, Budts, W, Sluman, MA, Eriksen, K, Berghammer, M, Johansson, B, Caruana, M, Soufi, A, Callus, E & Moons, P 2019, 'Patient-reported outcomes of adults with congenital heart disease from eight European countries: scrutinising the association with healthcare system performance', European Journal of Cardiovascular Nursing, vol. 18, no. 6, pp. 465-473. https://doi.org/10.1177/1474515119834484

Standard

Patient-reported outcomes of adults with congenital heart disease from eight European countries : scrutinising the association with healthcare system performance. / APPROACH-IS Consortium; ISACHD; Van Bulck, Liesbet; Luyckx, Koen; Goossens, Eva; Apers, SiIke; Kovacs, Adrienne H.; Thomet, Corina; Budts, Werner; Sluman, Maayke A.; Eriksen, Katrine; Berghammer, Malin; Johansson, Bengt; Caruana, Maryanne; Soufi, Alexandra; Callus, Edward; Moons, Philip.

In: European Journal of Cardiovascular Nursing, Vol. 18, No. 6, 08.2019, p. 465-473.

Research output: Contribution to journalArticleAcademicpeer-review

Vancouver

APPROACH-IS Consortium, ISACHD, Van Bulck L, Luyckx K, Goossens E, Apers S et al. Patient-reported outcomes of adults with congenital heart disease from eight European countries: scrutinising the association with healthcare system performance. European Journal of Cardiovascular Nursing. 2019 Aug;18(6):465-473. https://doi.org/10.1177/1474515119834484


BibTeX

@article{921546c8732c429dbf38f67c247cd86f,
title = "Patient-reported outcomes of adults with congenital heart disease from eight European countries: scrutinising the association with healthcare system performance",
abstract = "Background: Inter-country variation in patient-reported outcomes of adults with congenital heart disease has been observed. Country-specific characteristics may play a role. A previous study found an association between healthcare system performance and patient-reported outcomes. However, it remains unknown which specific components of the countries' healthcare system performance are of importance for patient-reported outcomes. Aims: The aim of this study was to investigate the relationship between components of healthcare system performance and patient-reported outcomes in a large sample of adults with congenital heart disease. Methods: A total of 1591 adults with congenital heart disease (median age 34 years; 51% men; 32% simple, 48% moderate and 20% complex defects) from eight European countries were included in this cross-sectional study. The following patient-reported outcomes were measured: perceived physical and mental health, psychological distress, health behaviours and quality of life. The Euro Health Consumer Index 2015 and the Euro Heart Index 2016 were used as measures of healthcare system performance. General linear mixed models were conducted, adjusting for patient-specific variables and unmeasured country differences. Results: Health risk behaviours were associated with the Euro Health Consumer Index subdomains about patient rights and information, health outcomes and financing and access to pharmaceuticals. Perceived physical health was associated with the Euro Health Consumer Index subdomain about prevention of chronic diseases. Subscales of the Euro Heart Index were not associated with patient-reported outcomes. Conclusion: Several features of healthcare system performance are associated with perceived physical health and health risk behaviour in adults with congenital heart disease. Before recommendations for policy-makers and clinicians can be conducted, future research ought to investigate the impact of the healthcare system performance on outcomes further.",
keywords = "Healthcare system performance, heart defect, congenital, health services accessibility, patient reported outcome measures, ACTIVATION, STATEMENT, PATTERNS, QUALITY",
author = "{APPROACH-IS Consortium} and ISACHD and {Van Bulck}, Liesbet and Koen Luyckx and Eva Goossens and SiIke Apers and Kovacs, {Adrienne H.} and Corina Thomet and Werner Budts and Sluman, {Maayke A.} and Katrine Eriksen and Mikael Dellborg and Malin Berghammer and Bengt Johansson and Maryanne Caruana and Alexandra Soufi and Edward Callus and Philip Moons and Luis Alday and Hector Maisuls and Betina Vega and Samuel Menahem and Sarah Eaton and Wang, {Qi Feng} and Ruth Larion and {Van Deyk}, Kristien and Silke Apers and Jessica Rassart and Gwen Rempel and Andrew Mackie and Ross Ballantyne and Kathryn Rankin and Colleen Norris and Dylan Taylor and Isabelle Vondermuhll and Jonathan Windram and Pamela Heggie and Gerri Lasiuk and Paul Khairy and Anna Proietti and Annie Dore and Lise-Andree Mercier and Francois-Pierre Mongeon and Francois Marcotte and Reda Ibrahim and Blandine Mondesert and Marie-Claude Cote and Adrienne Kovacs and Erwin Oechslin and Mimi Bandyopadhyay and {Di Filippo}, Sylvie and Els Pieper",
year = "2019",
month = aug,
doi = "10.1177/1474515119834484",
language = "English",
volume = "18",
pages = "465--473",
journal = "European Journal of Cardiovascular Nursing",
issn = "1474-5151",
publisher = "SAGE Publications Inc.",
number = "6",

}

RIS

TY - JOUR

T1 - Patient-reported outcomes of adults with congenital heart disease from eight European countries

T2 - scrutinising the association with healthcare system performance

AU - APPROACH-IS Consortium

AU - ISACHD

AU - Van Bulck, Liesbet

AU - Luyckx, Koen

AU - Goossens, Eva

AU - Apers, SiIke

AU - Kovacs, Adrienne H.

AU - Thomet, Corina

AU - Budts, Werner

AU - Sluman, Maayke A.

AU - Eriksen, Katrine

AU - Dellborg, Mikael

AU - Berghammer, Malin

AU - Johansson, Bengt

AU - Caruana, Maryanne

AU - Soufi, Alexandra

AU - Callus, Edward

AU - Moons, Philip

AU - Alday, Luis

AU - Maisuls, Hector

AU - Vega, Betina

AU - Menahem, Samuel

AU - Eaton, Sarah

AU - Wang, Qi Feng

AU - Larion, Ruth

AU - Van Deyk, Kristien

AU - Apers, Silke

AU - Rassart, Jessica

AU - Rempel, Gwen

AU - Mackie, Andrew

AU - Ballantyne, Ross

AU - Rankin, Kathryn

AU - Norris, Colleen

AU - Taylor, Dylan

AU - Vondermuhll, Isabelle

AU - Windram, Jonathan

AU - Heggie, Pamela

AU - Lasiuk, Gerri

AU - Khairy, Paul

AU - Proietti, Anna

AU - Dore, Annie

AU - Mercier, Lise-Andree

AU - Mongeon, Francois-Pierre

AU - Marcotte, Francois

AU - Ibrahim, Reda

AU - Mondesert, Blandine

AU - Cote, Marie-Claude

AU - Kovacs, Adrienne

AU - Oechslin, Erwin

AU - Bandyopadhyay, Mimi

AU - Di Filippo, Sylvie

AU - Pieper, Els

PY - 2019/8

Y1 - 2019/8

N2 - Background: Inter-country variation in patient-reported outcomes of adults with congenital heart disease has been observed. Country-specific characteristics may play a role. A previous study found an association between healthcare system performance and patient-reported outcomes. However, it remains unknown which specific components of the countries' healthcare system performance are of importance for patient-reported outcomes. Aims: The aim of this study was to investigate the relationship between components of healthcare system performance and patient-reported outcomes in a large sample of adults with congenital heart disease. Methods: A total of 1591 adults with congenital heart disease (median age 34 years; 51% men; 32% simple, 48% moderate and 20% complex defects) from eight European countries were included in this cross-sectional study. The following patient-reported outcomes were measured: perceived physical and mental health, psychological distress, health behaviours and quality of life. The Euro Health Consumer Index 2015 and the Euro Heart Index 2016 were used as measures of healthcare system performance. General linear mixed models were conducted, adjusting for patient-specific variables and unmeasured country differences. Results: Health risk behaviours were associated with the Euro Health Consumer Index subdomains about patient rights and information, health outcomes and financing and access to pharmaceuticals. Perceived physical health was associated with the Euro Health Consumer Index subdomain about prevention of chronic diseases. Subscales of the Euro Heart Index were not associated with patient-reported outcomes. Conclusion: Several features of healthcare system performance are associated with perceived physical health and health risk behaviour in adults with congenital heart disease. Before recommendations for policy-makers and clinicians can be conducted, future research ought to investigate the impact of the healthcare system performance on outcomes further.

AB - Background: Inter-country variation in patient-reported outcomes of adults with congenital heart disease has been observed. Country-specific characteristics may play a role. A previous study found an association between healthcare system performance and patient-reported outcomes. However, it remains unknown which specific components of the countries' healthcare system performance are of importance for patient-reported outcomes. Aims: The aim of this study was to investigate the relationship between components of healthcare system performance and patient-reported outcomes in a large sample of adults with congenital heart disease. Methods: A total of 1591 adults with congenital heart disease (median age 34 years; 51% men; 32% simple, 48% moderate and 20% complex defects) from eight European countries were included in this cross-sectional study. The following patient-reported outcomes were measured: perceived physical and mental health, psychological distress, health behaviours and quality of life. The Euro Health Consumer Index 2015 and the Euro Heart Index 2016 were used as measures of healthcare system performance. General linear mixed models were conducted, adjusting for patient-specific variables and unmeasured country differences. Results: Health risk behaviours were associated with the Euro Health Consumer Index subdomains about patient rights and information, health outcomes and financing and access to pharmaceuticals. Perceived physical health was associated with the Euro Health Consumer Index subdomain about prevention of chronic diseases. Subscales of the Euro Heart Index were not associated with patient-reported outcomes. Conclusion: Several features of healthcare system performance are associated with perceived physical health and health risk behaviour in adults with congenital heart disease. Before recommendations for policy-makers and clinicians can be conducted, future research ought to investigate the impact of the healthcare system performance on outcomes further.

KW - Healthcare system performance

KW - heart defect

KW - congenital

KW - health services accessibility

KW - patient reported outcome measures

KW - ACTIVATION

KW - STATEMENT

KW - PATTERNS

KW - QUALITY

U2 - 10.1177/1474515119834484

DO - 10.1177/1474515119834484

M3 - Article

VL - 18

SP - 465

EP - 473

JO - European Journal of Cardiovascular Nursing

JF - European Journal of Cardiovascular Nursing

SN - 1474-5151

IS - 6

ER -

ID: 97122351