A Scoping Review of Key Health Items in Self-Report Instruments Used Among Solid Organ Transplant RecipientsShahabeddin Parizi, A., Krabbe, P. F. M., Buskens, E., Bakker, S. J. L. & Vermeulen, K. M., Apr-2019, In : Patient-Patient: centered outcomes research. 12, 2, p. 171-181 11 p.
Research output: Contribution to journal › Review article › Academic › peer-review
The overall aim of this scoping review of the literature is twofold: (1) to provide an overview of all instruments that have been used to assess health-related quality of life (HRQoL) after solid organ transplantation and (2) to provide a list of health items they include to support future studies on the development of a new-generation HRQoL instrument. All studies that administered any form of HRQoL instrument to post-transplant solid organ recipients were identified in a comprehensive search of PubMed (MEDLINE), Embase, and Web of Science, with a cut-off date of May 2018. The search used various combinations of the following keywords: lung, heart, liver, kidney, or pancreas transplantation; quality of life; well-being; patient-reported outcome; instrument; questionnaire; and health survey. In total, 8013 distinct publications were identified and 1218 of these were selected for review. Among the instruments applied, 53 measured generic, 51 organ-specific, 271 domain-specific, and 43 transplant-specific HRQoL. A total of 78 distinct health items grouped into 16 sub-domains were identified and depicted graphically. The majority of publications did not report a logical rationale for the choice of specific HRQoL instrument. The most commonly used types of instruments were generic health instruments, followed by domain-specific instruments. Despite the availability of transplant-specific instruments, few studies applied these types of instruments. Based on the 78 items, further research is planned to develop a patient-centered, transplant-specific HRQoL instrument that is concise, easy to apply (mobile application), and specifically related to the health issues of solid organ recipients.
|Number of pages||11|
|Journal||Patient-Patient: centered outcomes research|
|Early online date||2018|
|Publication status||Published - Apr-2019|
- QUALITY-OF-LIFE, LIVER-TRANSPLANTATION, LUNG TRANSPLANTATION, SYMPTOM EXPERIENCE, EFFECTS QUESTIONNAIRE, DISEASE, OUTCOMES, SURVIVAL, IMPACT, KIDNEY