Press / Media items

International Liver Glycogen Storage Disease (IGSD) Priority Setting Partnership

Press / Media: Research

16/06/2017

We would like to welcome you to the website for the International Liver Glycogen Storage Disease (IGSD) Priority Setting Partnership.
The International Liver Glycogen Storage Disease (IGSD) Priority Setting Partnership (PSP) is set up to find out what the unanswered questions from patients with Liver GSD, families and healthcare professionals

We want to enable patients, carers, physicians, nurses and dieticians to work together to find what questions about management and care for patients with Liver GSD matter to all. Together, we will set a research agenda to strive towards better management and care of patients with Liver GSD.

References

  • International Liver Glycogen Storage Disease (IGSD) Priority Setting Partnership

    http://igsdpsp.com

ID: 47878908