Janssen, Prof. Marleen

Marleen Janssen studied Orthopedagogy in Utrecht and worked for a long time at the only deafblind school in the Netherlands, Kentalis-Rafaël in Sint-Michielsgestel. In 2003 she gained her PhD at the Radboud University Nijmegen with a thesis on harmonious interactions with the deafblind. She is professor of Orthopedagogy at the University of Groningen, specializing in Congenital and Early-acquired Deafblindness.

Due to a lack of knowledge, many deafblind people in the Netherlands are mistakenly treated as if they can hear and see. This leads to serious emotional and behavioural problems. But there’s much to be gained from more research and more knowledge transfer. When they are properly supported, deafblind people can even develop a fully-fledged language. Janssen is the first professor in the world who concentrates specifically on communicating with the deafblind. Since 2007, Janssen has also had a long-term partnership with Koninklijke Kentalis, a specialist in the field of communicative limitations. The Bartimeus Foundation, specialist in the field of visual impairments, has joined forces with them. Janssen is also co-director of the Research Centre on Profound and Multiple Disabilities of the University of Groningen.

Janssen is initiator of the University of Groningen Institute for Deafblindness, dedicated to research and teaching on both congenital and acquired deafblindness. This new, interdisciplinary Groningen-based institute is the first research institute ever to focus exclusively on deafblindness.

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Publications

2020

de Jonge-Hoekstra, L., Janssen, M., Cox, R. F. A., & van Nuunen, T. (2020). Can you feel my rhythm? Interpersonal coordination between a child with deafblindness and their mentor. Poster session presented at Many Paths to Language, Nijmegen (online), Netherlands. https://doi.org/10.13140/RG.2.2.30498.25285

Wolthuis, K., Bol, G. W., Minnaert, A., & Janssen, M. J. (2020). Monitoring communication development between teachers and their students with congenital deafblindness: An application of the Layered Communication Model. Frontiers in Education, 5, [586122]. https://doi.org/10.3389/feduc.2020.586122

Worm, M., Damen, S., Minnaert, A., & Janssen, M. (2020). Multiparty conversations with people with congenital deafblindness: Operationalization, significance, and requirements. Frontiers in Education, 5, [542376]. https://doi.org/10.3389/feduc.2020.542376

2019

Wolthuis, K., Bol, G. W., Minnaert, A., & Janssen, M. J. (2019). Communication development from an intersubjective perspective: Exploring the use of a layered communication model to describe communication development in students with congenital deafblindness. Journal of Communication Disorders, 80, 35-51. https://doi.org/10.1016/j.jcomdis.2019.04.001

2018

Janssen, H., & Damen, S. (2018). Communicatiecoaching: een effectieve vorm van professionaliseren in onderwijs en zorg aan personen met doofblindheid. Orthopedagogiek: Onderzoek en Praktijk, 57(3-6), 100-108.

Bloeming-Wolbrink, K. A., Janssen, M., Ruijssenaars, W. A. J. J. M., & Riksen-Walraven, J. M. (2018). Effects of an Intervention Program on Interaction and Communication in Adults with Congenital Deafblindness and an Intellectual Disability. Journal of Deafblind Studies on Communication, 4(1), 39-66.

Janssen, H. (2018). Recent Advances in Deafblind Studies. In Proceedings VIII Congresso Braziliero De Educacao Especial. Sao Carlos (pp. 1-20).

Janssen, H., & Damen, S. (2018). Voel jij wat ik bedoel? Communicatieve competenties en doofblindheid. Paper presented at Symposium 50 jaar Orthopedagogiek Groningen, Groningen, Netherlands.

2017

Haakma, I., Janssen, M., & Minnaert, A. (2018). Need support in students with visual impairments: Comparing teacher and student perspectives. Frontiers in Education, 2(71). https://doi.org/10.3389/feduc.2017.00071

Haakma, I., Janssen, M., & Minnaert, A. (2017). A literature review on the psychological needs of students with sensory loss. The Volta Review, 116(1-2), 29-58. http://www.ingentaconnect.com/contentone/agbell/vr/2017/00000116/00000001/art00002

Janssen, H. (2017). Communication in the context of congenital deafblindness – ten years of study: How knowledge and practice develop. Journal of Deafblind Studies on Communication.

Martens, M., Janssen, H., Ruijssenaars, A., Huisman, M., & Riksen-Walraven, J. M. (2017). Fostering Emotion Expression and Affective Involvement with Communication Partners in People with Congenital Deafblindness and Intellectual Disabilities. Journal of Applied Research in Intellectual Disabilities, 30, 872-884. https://doi.org/10.1111/jar.12279

Haakma, I., Janssen, M., & Minnaert, A. (2017). Intervening to improve teachers’ need-supportive behaviour using Self-Determination Theory: Its effects on teachers and on the motivation of students with deafblindness. International journal of disability development and education, 64(3), 310-327. https://doi.org/10.1080/1034912X.2016.1213376

Janssen, H. (2017). Menschen mit Taubblindheit und Hörsehbehinderung professionell begegnen. Paper presented at Internationaler Fachkongress, Hannover, Germany.

Damen, S., Janssen, M. J., Ruijssenaars, W. A. J. J. M., & Schuengel, C. (2017). Scaffolding the communication of people with congenital deafblindness: An analysis of sequential interaction patterns. American Annals of the Deaf, 162(1), 24-33. https://doi.org/10.1353/aad.2017.0012

Haakma, I., Janssen, M., & Minnaert, A. (2017). The Influence of need-supportive teacher behavior on the motivation of student with congenital deaf-blindness. Journal of Visual Impairment and Blindness, 111(3), 247-260.

Haakma, I., Janssen, M., & Minnaert, A. (2017). The Influence of Need-Supportive Teacher Behavior on the Motivation of Students with Congenital Deafblindness. Journal of Visual Impairment & Blindness, 111(3), 247-260. https://doi.org/10.1177/0145482X1711100305

2016

Haakma, I., Janssen, M., & Minnaert, A. (2016). A literature review on how need-supportive behavior influences motivation in students with sensory loss. Teaching and Teacher Education, 57, 1-13. https://doi.org/10.1016/j.tate.2016.02.008

Bruce, S. M., Janssen, M. J., & Bashinski, S. M. (2016). Individualizing and Personalizing communication and Literacy instruction for Children who are Deafblind. Journal of Deafblind Studies on Communication, 2(1), 73-87. [2, 1, 2016].

Lembcke, H., Ask Larsen, F., & Janssen, H. (2016). Influence of causal attributions on Emotional and Behavioral Reactions of care workers towards challenging Behavior among persons with deafblindness. Journal of Deafblind Studies on Communication, 2(1), 22-44. http://jdbsc.rug.nl/article/view/25419

Janssen, M. (2016). Kentalis Business Challenge.

Haakma, I., Janssen, M., & Minnaert, A. (2016). Understanding the relationship between teacher behavior and motivation in students with acquired deafblindness. American Annals of the Deaf, 161(3), 314-326. https://doi.org/10.1353/aad.2016.0024

2015

Damen, S., Janssen, M. J., Ruijssenaars, W. A. J. J. M., & Schuengel, C. (2015). Communication between children with congenital deafness, blindness and deafblindness and their social partners: an intersubjective perspective. International journal of disability development and education, 62(2), 215-243. https://doi.org/10.1080/1034912X.2014.998177

Janssen, M. J. (2015). Editor's page. Journal of Deafblind Studies on Communication, 1(1), 2-3.

Bloeming-Wolbrink, K. A., Janssen, M. J., Ruijssenaars, W. A. J. J. M., Menke, R., & Riksen-Walraven, J. M. (2015). Effects of changes in life circumstances on interaction and communication in adults with congenital deafblindness and an intellectual disability. British Journal of Visual Impairment, 33(1), 31-44. https://doi.org/10.1177/0264619614558429

Hoekstra, L., Cox, R. F. A., & Janssen, M. (2015). Feel the Rhythm - Embedded & embodied communication of a deafblind girl. Poster session presented at Heymans Symposium 2015, Groningen, Netherlands. http://www.rug.nl/research/heymans-institute/organization/symposiumcolloquia/2015-heymans-symposium?lang=en

Janssen, H. (2015). Interpersoonlijke communicatie: Orthopedagogische interventies maken het verschil. In J. Knot-Dickscheit, A. M. N. Huyghen, H. J. M. Post, W. J. Post, I. Haakma, & H. Grietens (Eds.), Orthopedagogiek maakt verschil!: Profiel en toekomst van een discipline in beweging Uitgeverij Acco.

Janssen, M. (2015). Intersubjective communication: Model for guiding high quality communication interventions in people with deafblindness. Paper presented at 22nd International Congress on the Education of the Deaf. Educating Deaf learners, Many Ways,One goal , Athens, Netherlands.

Janssen, M. (2015). Intersubjective communication in persons with congenital deafblindness. Paper presented at 9th National Meeting of families and professionals specialized on Deafblindness, Sao Paulo Brasil, Netherlands.

Damen, S., Janssen, M. J., Ruijssenaars, W. A. J. J. M., & Schuengel, C. (2015). Intersubjectivity Effects of the High-Quality Communication Intervention in People with Deafblindness. Journal of Deaf Studies and Deaf Education, 20(2), 191-201. https://doi.org/10.1093/deafed/env001

Janssen, M. (2015). Intervention models for communication. Paper presented at 9th National meeting of families and professionals specialized in Deafblindness, Sao Paulo Brasil, Netherlands.

Janssen, H. (2015). Journal of Deafblind Studies on Communication. Paper presented at Research without paywalls - Symposium Chances and challenges of open access to the humanities and social sciences, Groningen, .

Grietens, H., Haakma, I., Huyghen, A., Janssen, H., Knot-Dickscheit, J., & Post, W. (2015). Orthopedagogiek, een kwetsbare discipline? In J. Knot-Dickscheit, A. M. N. Huyghen, H. J. M. Janssen, W. J. Post, I. Haakma, & H. Grietens (Eds.), Orthopedagogiek maakt verschil!: Profiel en toekomst van een discipline in beweging (Eerste druk ed., pp. 15-17). Uitgeverij Acco.

Knot-Dickscheit, J., Huyghen, A., Janssen, H., & Post, W. (2015). Orthopedagogiek maakt het verschil: Profiel en toekomst van een discipline in beweging. Uitgeverij Acco.

Knot-Dickscheit, J., Huyghen, A. M. N., Janssen, H. J. M., Post, W. J., Haakma, I., & Grietens, H. (Eds.) (2015). Orthopedagogiek maakt verschil! Profiel en toekomst van een discipline in beweging. Uitgeverij Acco.

Janssen, M., Bruce, S., & Bashinski, S. (2015). Personalizing communication, language and literacy: Why individualizing may not be enough. Paper presented at 16th DbI Worldconference What is our future? Local solutions to common needs, Bucharest Romenia, Netherlands.

Janssen, M. (2015). Research program on High Quality Communication. Paper presented at 16th Deafblind International (DBI) 16th World Conference: "What is our future? Local solutions to common needs", Bucharest, Netherlands.

Grietens, H., Haakma, I., Huyghen, A., Janssen, H., Knot-Dickscheit, J., & Post, W. (2015). Slotbeschouwing. In J. Knot-Dickscheit, A. M. N. Huyghen, H. J. M. Janssen, W. J. Post, I. Haakma, & H. Grietens (Eds.), Orthopedagogiek maakt verschil!: Profiel en toekomst van een discipline in beweging (Eerste druk ed., pp. 311-312). Uitgeverij Acco.

2014

Martens, M. A. W., Janssen, M. J., Ruijssenaars, W. A. J. J. M., Huisman, M., & Riksen-Walraven, J. M. (2014). Applying the intervention model for fostering affective involvement with persons who are congenitally deafblind: An effect study. Journal of Visual Impairment & Blindness, 108(5), 399-413.

Janssen, M. (2014). Belang van evidence based practice voor de ondersteuning van personen met aangeboren doofblindheid. Symposium Een Kwestie van Betekenis, Driebergen, Netherlands.

Martens, M., & Janssen, M. J. (2014). Developing evidence-based methods for fostering high quality interpersonal communication with people who are congenital deafblind. DbI Review, 53(July), 58-62.

Janssen, M. J. (2014). Het interventieprogramma Contact. Bevorderen van harmonieuze interacties bij kinderen met doofblindheid. Orthopedagogiek: Onderzoek en Praktijk, 53(7-8), 339-353.

Janssen, M., & Martens, M. (2014). Intersubjectiviteit.

Martens, M. A. W., Janssen, M. J., Ruijssenaars, W. A. J. J. M., Huisman, M., & Riksen-Walraven, J. M. (2014). Intervening on Affective Involvement and Expression of Emotions in an Adult With Congenital Deafblindness. Communication Disorders Quarterly, 36(1), 12-20. https://doi.org/10.1177/1525740114526926

Martens, M., Janssen, M. J., Ruijssenaars, A., & Riksen-Walraven, J. M. (2014). Introducing an intervention model for fostering affective involvement with persons who are congenitally deafblind. Journal of Visual Impairment & Blindness, 108(1), 29-41.

Janssen, M. J., Brink-Groenendijk, N. C. R., Riksen-Walraven, J. M., Huisman, M., van Dijk, J. P. M., & Ruijssenaars, W. A. J. J. M. (2014). Measuring sustained interaction in adults with deafblindness and multiple disabilities: Development of an observational coding system. British Journal of Visual Impairment, 32(2), 68-76. https://doi.org/10.1177/0264619614528344

Damen, S., Janssen, M. J., Huisman, M., Ruijssenaars, W. A. J. J. M., & Schuengel, C. (2014). Stimulating Intersubjective Communication in an Adult with Deafblindness: A Single-Case Experiment. Journal of Deaf Studies and Deaf Education, 19(3), 366-384. https://doi.org/10.1093/deafed/enu006

2013

Janssen, M., Bruce, S., & Bashinski, S. (2013). Communication, Language and Literacy: Effective Strategies for Learners Who Are Deafblind. Paper presented at 8th European Conference ‘Identities and Changes: Commonalities across Deafblindness – Learning from each other’, Lille, France.

Damen, S., & Janssen, M. (2013). Developing Shared Meanings in Conversations between People with Congenitally Deafblindness and their Social Partner. Paper presented at 8th DBI European conference, Lille, France.

Janssen, M. (2013). High Quality Communication in people with congenital deafblindness: Results of a research program. Paper presented at 7th World Conference Cornelia de Lange Syndrome (CdLS), Buenos Aires, Argentina.

Janssen, M. (2013). Research program on High Quality Communication: Initial Results and focus on Future. Paper presented at 8th European Conference ‘Identities and Changes: Commonalities across Deafblindness – Learning from each other’, Lille, France.

Boers, E., Janssen, M. J., Minnaert, A. E. M. G., & Ruijssenaars, W. A. J. J. M. (2013). The Application of Dynamic Assessment in People Communicating at a Prelinguistic Level: A descriptive review of the literature. International journal of disability development and education, 60(2), 119-145. [27]. https://doi.org/10.1080/1034912X.2013.786564

2012

Janssen, M. J., Riksen-Walraven, J. M., Van Dijk, J. P. M., Huisman, M., & Ruijssenaars, W. A. J. J. M. (2012). Enhancing Sustained Interaction Between Children with Congenital Deaf-Blindness and Their Educators. Journal of Visual Impairment & Blindness, 106(3), 177-183.

Boers, E., & Janssen, M. (2012). Interaction and Communication Analysis List (ICAL). Unpublished. In Reliable assessment of communication abilities in people with congenital deafblindness and their communication partners by the Interaction and Communication List

Bloeming-Wolbrink, K. A., Janssen, H. J. M., De Weerth, C., Ruijssenaars, A. J. J. M., Sweep, F. C. G. J., & Riksen-Walraven, J. M. (2012). Stress in adults with congenital deafblindness and an intellectual disability: Information from their cortisol curves. British Journal of Visual Impairment, 30(3), 149 - 159.

Janssen, M. J., Huisman, M., Van Dijk, J. P. M., & Ruijssenaars, W. A. J. J. M. (2012). Touching textures in different tasks by a woman with congenital deaf-blindness. Journal of Visual Impairment & Blindness, 106(11), 739 - 745.

2011

Ruiter, S., Nakken, H., Janssen, M., Van der Meulen, B., & Looijestijn, P. (2011). Adaptive assessment of young children with visual impairment. British Journal of Visual Impairment, 29(2), 93-112. https://doi.org/10.1177/0264619611402766

Janssen, H. J. M. (2011, Jun 23). Communiceren op de tast. Ondersteunende communicatie strategieën bij mensen met doofblindheid.

Janssen, M. J., Riksen-Walraven, J. M., van Dijk, J. P. M., Huisman, M., & Ruijssenaars, W. A. J. J. M. (2011). Fostering harmonious interactions in a boy with congenital deaf-blindness: A Single-Case Study. Journal of Visual Impairment and Blindness, 105(9), 560-572.

Janssen, H. J. M., Martens, M., & Ruijssenaars, A. J. J. M. (2011). Kinderen met doofblindheid. In J. D. Van der Ploeg, & E. M. Scholte (Eds.), Orthopedagogische probleemvelden en voorzieningen in Nederland (pp. 189 - 205). Garant Publishers.

Janssen, H. J. M. (Author). (2011). Morgen wordt het donker. Performance

Janssen, H. J. M. (2011, Sep 15). Niemand wordt slim tegen zijn zin. From International Shared Knowledge to Evidence Based Practice.

2010

Janssen, H. J. M. (2010). Doofblindheid en communicatie, een orthopedagogische invalshoek. Tijdschrift voor Orthopedagogiek, 49(3), 124 - 132.

Antonissen, A., & Janssen, H. J. M. (2010). Goed contact als basis voor communicatie. Hoe de interactie en communicatie met kinderen en volwassenen met doofblindheid bevorderd kan worden. Logopedie en Foniatrie, 82(11), 336 - 341.

Janssen, M. J., Riksen-Walraven, J. M., van Dijk, J. P. M., & Ruijssenaars, W. A. J. J. M. (2010). Interaction Coaching with Mothers of Children with Congenital Deaf-Blindness at Home: Applying the Diagnostic Intervention Model. Journal of Visual Impairment and Blindness, 104(1), 15-29.

Nelson, C., Janssen, H. J. M., Oster, T., & Jayaraman, G. (2010). Reliability and fidelity of the Van Dijk Assessment. Research and Practice in Visual Impairment and Blindness, 3(3), 71 - 80.

2009

Janssen, H. J. M. (2009). Development of thinking and practice in the field of deafblindness. Dynamics in deafblindness: Towards evidence based practice. In Proceedings of the 7th Deafblind International European Conference ‘Tides, Waves and Currents in Research and Action (pp. 28-41). Deafblind International & Lega del Filo d’Oro.

Janssen, H. J. M. (2009). Doofblindheid en communicatie, een orthopedagogische. Grafimedia.

Souriau, J., Rødbroe, I., & Janssen, H. J. M. (2009). Transition to cultural language: Communication and congenital deafblindness. Handbook 4 (with cd-rom). VCDB/Viataal.

Janssen, H. J. M. (2009). Voorvechter voor doofblinden. Interview met Walter van Hulst. Markant.

2008

Souriau, J., Rodbroe, I., & Janssen, H. J. M. (2008). Communication and Congenital Deafblindness. Meaning Making. VCDB/Viataal.

Janssen, H. J. M. (2008). Doof en Blind. In honderd jaar is er niets veranderd voor doofblinden. Interview with Liesbeth Koenen. NRC Handelsblad, 1 - 2.

Janssen, H. J. M. (2008). Leven zonder taal. Interview with Joanna Brenninkmeijer. Broerstraat 5, 2, 8 - 9.

Janssen, H. J. M. (2008). Oog voor doofblinden. unknown / not applicable / onbekend / n.v.t..

Janssen, H. J. M. (2008, Jun 16). Organisatie Leeds conferentie i.s.m. DbI Communication Network.

Ruijssenaars, A. J. J. M., den Daas, H., Janssen, H. J. M., Lunenborg, C., & Speelman-Komen, H. M. (2008). Orthopedagogiek, dynamiek en unieke patronen. In E. J. Knorth, H. Nakken, C. E. Oenema-Mostert, A. J. J. M. Ruijssenaars, & J. Strijker (Eds.), De ontwikkeling van kinderen met problemen: gewoon anders (pp. 17-27). Garant Publishers.

Janssen, H. J. M. (2008, Aug 28). Radio interview opgenomen in de studio van RTV Noord, uitgezonden op Radio 1.

Janssen, H. J. M. (2008, Mar 28). Stafftraining and Deafblindness. The Challenge of Communication.

Daelman, M., & Janssen, H. J. M. (2008, Oct 8). Workshops on Dialogicality, Joint Attention, Gestures and Language,

2007

Janssen, H. J. M. (2007). Centrum van de wereld in onderzoek naar doofblindheid. Dagblad van het Noorden.

Janssen, H. J. M., & Rǿdbroe, L. (2007). Communication and congenital deafblindness: Contact and social interaction. VCDB/Viataal.

Janssen, H. J. M., & Rǿdbroe, L. (2007). Communication and congenital deafblindness. Contact and social interaction. VCDB/Viataal.

Janssen, H. J. M. (2007, Oct 16). Communication with people who are congenitally deafblind.

Janssen, H. J. M., & Rødbroe, I. (2007). Contact and Social Interaction. Communication and Congenital Deafblindness. Book 2 (with cd-rom). VCDB/Viataal.

Janssen, H. J. M. (2007, Nov 15). Doof en Blind. RTL4.

Janssen, H. J. M. (2007, Nov 15). Doof en Blind. TV Noord.

Janssen, H. J. M. (2007, Sep 6). Doofblindheid een unieke beperking mét mogelijkheden.

Janssen, H. J. M. (2007, Nov 5). doofblindheid en communicatie. Radio Noord.

Janssen, H. J. M. (2007, Nov 7). Doofblindheid en communicatie. Kunnen we perspectief bieden?

Janssen, H. J. M. (2007, Nov 6). Eerste Masters afgestudeerd in Groningen. Aangeboren doofblindheid en communicatie.

Janssen, H. J. M. (2007, Sep 25). European Master on Communication and Congenital Deafblindness.

Malloy, P., & Janssen, H. J. M. (2007). Harmonious Interactions. National Consortium On DeafBlindness, 1, 1 - 4.

Janssen, H. J. M. (2007, Nov 6). Master Communication and Congenital Deafblindness. Radio Noord.

Janssen, H. J. M. (2007, Nov 7). Masters afgestudeerd in Groningen: aangeboren doofblindheid en communicatie.

Janssen, M. J., Riksen-Walraven, J. M., Van Dijk, J. P. A., Ruijssenaars, W. A. J. J. M., & Vlaskarnp, C. (2007). Team interaction coaching with educators of adolescents who are deaf-blind: Applying the Diagnostic Intervention Model. Journal of Visual Impairment and Blindness, 101(11), 677-689. https://doi.org/10.1177/0145482X0710101102

Janssen, H. J. M., Nota, S., Eling, P. A. T. M., & Ruijssenaars, A. J. J. M. (2007). The advantage of encoding tactile information for a woman with congenital deaf-blindness. Journal of Visual Impairment and Blindness, 101(10), 653-657.

Janssen, H. J. M. (2007). Ze kennen geen enkel soort taal. Universiteitskrant. Onafhankelijk weekblad voor de Rijksuniversiteit Groningen.

2006

Janssen, M. J., Riksen-Walraven, J. M., & van Dijk, J. P. M. (2006). Applying the diagnostic intervention model for fostering harmonious interactions between deaf-blind children and their educators: A case study. Journal of Visual Impairment and Blindness, 100(2), 91-105. https://doi.org/10.1177/0145482X0610000204

Rødbroe, I., & Janssen, H. J. M. (2006). Congenital Deafblindness and the Core Principles of Intervention. Communication and Congenital Deafblindness. Handbook 1. VCDB/Viataal.

Janssen, M. P., van der Poel, C. L., Buskens, E., Bonneux, L., Bonsel, G. J., & van Hout, B. A. (2006). Costs and benefits of bacterial culturing and pathogen reduction in the Netherlands. Transfusion, 46(6), 956-965.

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